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You are here: Home / Archives for adult child

Has Caregiving Silenced You?

September 13, 2014 by Marylee MacDonald

When I opened YOU WANT ME TO DO WHAT? Journaling for Caregivers, I felt that I had been invited to join a circle of intimate friends. There’s a voice to this practical and inspirational guide that made me immediately trust that the book would lead me some place special. I contacted the author, B. Lynn Goodwin, and asked if she could tell me more about the book and how it came to be.
You Want Me to Do What?

MM: The book encourages caregivers to put on their own oxygen mask first. How did that image come to you?
BLG: I’d love to tell you it was original, but the truth is that Sybil Lockhart, who wrote a memoir called Mother in the Middle, suggested it to me. The minute I heard it, I knew she was right. She was a caregiver for her mother, and you might want to check out her book as well.

MM: Caregivers are often advised to take care of themselves. I had people tell me I should get my nails done or go to a day spa. That’s often not possible, given a caregiver’s day-to-day responsibilities. Can you explain how this book could help caregivers who can’t leave the house?
BLG: You can write about fantasies as well as frustrations. Let your writing go where it wants to go, without worrying about structure or form. Let your mind skip around. You’re getting to what you really want to say, and you may not know what that is when you start.

MM: Do you think that something about caregiving turns caregivers into “voiceless” beings?
BLG: It depends on who you are and who you care for. It depends on how badly you want to please the person you’re helping and how open that person is to your ideas. It’s hard for an unmarried daughter to parent her mother. It can also be rewarding. Sometimes it’s simpler to be “voiceless,” but if it’s turning you into a child or an emotional wreck, you need to reclaim your voice. Writing helps, because a journal doesn’t interrupt.

MM: The open-ended prompts lead readers gently into rooms they might not have occupied for quite a while, namely the rooms of their own legitimate needs and feelings. How did you choose these particular prompts?
BLG: I’d used some of them with my free writing group, the one Sybil Lockhart is in. Others came to me as sentences I’d like to finish or sentences I needed to finish. For several years I used sentence starts to help my tenth grade students journal, so I knew they worked in an open-ended way. If a sentence start doesn’t work, look around the room for any sensory image, like the dull drone of a commercial blaring from the TV in the next room. Start there, and see where it takes you. Make leaps. Or comparisons. Or let your mind take you into unknown territory.

MM: One section I particularly like is called “Thoughts About Reclaiming Myself.” This struck me as an extremely wise section. It suggests a future. It suggests that life will get back to normal. Do you think the prompts here are good ones for people who are still caregivers?
BLG: Absolutely. I am living proof that life will get back to normal. I shut down my world to help my mother. When I reopened it, I found new paths. Writing helped me imagine a future and kept me from feeling like I was trapped in an endless loop.

MM: Can you say more about the benefits of writing for fifteen minutes a day, the time frame you suggest in the book?
BLG: Writing for fifteen minutes can clear your mind. It’s like erasing a white board. Once it’s clear, you start again. You let go of what was there (the obsession du jour) and you start fresh. You process. You have enough time to complete a thought but not so much time that you feel the process will never end. If fifteen minutes doesn’t work, try ten or twenty. Write enough to get your thoughts out, but leave yourself wanting more. If you’re eager to share a journal entry, feel free to send it to me at Lgood67334@comcast.net. I’ll tell you what’s already working in the writing. If you ask for help, I may be able to guide you to resources.

MM: Is there a reason for recovering caregivers to use your book after their loved one is gone?
BLG: Once your loved one is gone, you have more time for reflection. It’s a great time to recall both good and bad moments. A relationship doesn’t end when a person dies. I wrote a letter to my mother yesterday while sitting in a restaurant where we used to eat lunch after she had her hair done. I’d just had lunch with my husband, whom I’d met ten years after she was gone. I had a lot to say, and the form opened me up so that I felt like I was talking to her. It was very freeing.

If you are a writer dealing with imaginary people, try letting your characters journal. Use the sentence starts in the book. I can practically guarantee your characters will become more three-dimensional.

B. Lynn Goodwin
B. Lynn Goodwin

MM: What are you working on now?
BLG: I had a YA novel (young adult) called Talent picked up by Eternal Press. It should be out in 2015. I’m working on a memoir about getting married for the first time at age sixty-two. I continue to coach writers, and publish Writer Advice. Check out our latest interviews, reviews, and contests at www.writeradvice.com.

Thanks for this opportunity, Marylee. It’s been a pleasure to answer your questions.
http://www.facebook.com/blynn.goodwin.
http://twitter.com/Lgood67334

Caregiving in Life and Art

July 2, 2014 by Marylee MacDonald

Angela Lam Turpin at her book signing, 2013
Angela Lam Turpin at her book signing, 2013

By Angela Lam Turpin

I am a caregiver. Not by choice, but by fate.

Nineteen years ago my son was born with multiple disabilities. My husband and I chose to care for him at home. We have struggled over the years to find adequate health care, education, and respite services for him and our family. Most days we are grateful. Some days we are frustrated. A few days we despair. A couple of days we hope.

My short story, “Hope in the Laundry Room,” from my short story collection, THE HUMAN ACT, published by All Things That Matter Press was inspired by the long-term caregiving of my son.

Tracy, the mysterious girl in the black gabardine suit, brings her clothes to the Laundromat during the week while her disabled son is at school. Since she works, she loads the washers on her break at ten-thirty and returns to place them into the dryers at noon and takes them home with her at two-thirty. Her life is circumscribed by a strict routine which creates an artificial order to the chaos of her life.

Although I am not Tracy and Tracy is not me, I understand Tracy’s dilemma of living her life around the edges of her son and his needs. Days are organized around my son Gabriel’s schedule. Job opportunities are accepted or declined based on whether or not the job will provide the necessary income and work hours to accommodate my son’s needs and school schedule.

Vacations are planned with my son’s limitations taken into account. We have to drive, not fly. We have to stay in a hotel in a single room with someone sharing a bed so that he will not get up and wander around during the night. We have to pack and prepare meals to accommodate his gluten-free diet. We have to find family friendly bathrooms to change his diaper. Nothing is spontaneous. Everything must be planned. Any deviation in the plan can result in a disaster.

But that’s where the similarities between Tracy and I end. While Tracy confronts the possibility of romance and companionship with the narrator who is intrigued by Tracy and her son, I am entrenched in the daily life of marriage with a partner who has shared the same struggles as a caregiver from the very beginning. My husband and I take shifts, caring for a young man who seldom sleeps, constantly eats, and only wants to listen to music.

The challenge to keep a romantic, long-term relationship alive and well is complicated as we enter middle age. Who will care for us when we can no longer care for ourselves? Who will take care of our son once we are gone?

Gabriel, our son
Gabriel, our son

By writing fiction, I can explore those possibilities without fear. I can step into another person’s shoes, similar to mine yet different, and take a chance where before I couldn’t. I can find answers to questions I’ve asked but have been afraid to answer. And, ultimately, I can find the hope and the strength to carry on.
Website: http://www.angelalamturpin.com

Audio Book: http://tinyurl.com/khmepfy

Kindle: http://tinyurl.com/k46fs8y

Paperback: http://tinyurl.com/phawuwx

book cover showing two rocking chairs on a porch in the moonlight





A mid-life mom, Colleen Gallagher would do anything to protect her children from harm. When her daughter’s husband falls ill with ALS, Colleen rolls up her sleeves and moves in, juggling the multiple roles of grandma, cook, and caregiver, only to discover that even her superhuman efforts can’t fix what’s wrong.

“A heartrending story of love, loss and the endurance of the human spirit.” – Literary Fiction Book Review

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