
“I’m never leaving this house.” Or, in the case of my mother, a woman determined never to leave her house. “I don’t care if you come in and step over my dead body.” Unfortunately, she had so many health problems that paid home health care became a necessity. She resisted that, too.
Most adult “children” of aging parents have had some kind of conversation about what happens when a parent obviously needs more help. Often, these attempts at dialogue are met with resistance. And it’s understandable. A home is not just walls and rooms, It’s decades of memory, independence, and identity. The desire to stay is real and deserves to be taken seriously.
But “I’m never leaving” is not a plan. It’s a wish. And wishes collide with the realities of aging. Health changes, mobility limits, cognitive shifts, the rising cost of in-home care can leave families scrambling to make urgent decisions under the worst possible conditions. The goal of this post is not to argue that you should move or that you should get your parents to move. It’s to argue that you should plan for the future now, while you have the luxury of time and choice.
The Real Costs of Staying Home
Aging in place—staying in your own home as you grow older—is a legitimate and meaningful choice for many people. With the right support it can work well. But it’s important to look honestly at what that support actually costs. I’m not just talking about money. There are hidden costs. Do family members live nearby? Is the family large or small? Is there a way to divide the caregiving workload fairly? Are all potential caregivers equally skilled at handling physical caregiving tasks?
And logistics matter, too. Do caregivers live ten minutes from the aging parent’s home, or does getting there require a five hour drive? How about a plane ride?
And what about the emotional and financial toll on the family caregiver? Caring for an aging or frail parent often interrupts a caregiver’s career, endangering their own retirement options. Long-term caregiving that drags on for years takes a toll on the family members who provide it.
Ninety Percent of Older Americans Want to Stay in Their Own Homes
There is a lot of talk about the benefits of aging in place. If that’s really where an aging parent comes down, then it makes sense to check out what kinds of services can support that decision. Getting these kinds of support services in place early will reduce the amount of stress on family caregivers.
On the local level, there are many groups that offer friendship, community, and support. Boston’s Friendship Works is a volunteer group that’s been around for thirty-five years. It connects volunteers with aging elders. A similar organization is Boston Village. In California’s San Francisco Bay Area, organizations like San Francisco Village or Ashby Village offer members vetted volunteers, discounted services, and community events. On the national level, Habitat for Humanity, a charity much beloved by former President Jimmy Carter, has programs that support those who need help maintaining their homes. Also, nationally, the National Council on Aging, an oldie but goodie, provides a wealth of information about dealing with Medicare and about avoiding online scams.
One of the best places to combat the loneliness that comes with aging is the Village to Village Network. This is a nationwide movement that supports local groups formed to meet the needs of older people. Also, every state has a designated agency responsible for older Americans. However, their names and structures vary. While some operate as standalone Departments on Aging, others function as commissions, boards, or divisions within broader Health and Human Services departments. The point is, every state receives federal funding under the Older Americans Act to manage these services. No matter where you live, you can connect with your state’s unit and with local Area Agencies on Aging.
- National Contact: Call the federal Eldercare Locator at 1-800-677-1116 to reach your local office.
- State Directory: View the national State Units on Aging directory for direct links to your specific state’s official services.
To support parents who insist on remaining in their own homes, it would be a good idea to connect with local groups early. Establishing these connections can be a great boon for both aging parents and caregivers. At some point, however, volunteer help may not be enough.
What Are the Options for Paid In-Home Care?
Around-the-clock in-home care is expensive. Depending on where you live, a home health aide costs anywhere from $25 to $40 per hour. At 24-hour coverage, that’s roughly $18,000 to $29,000 per month—more than most assisted living facilities and approaching the cost of skilled nursing care. Many families try to cobble together a combination of paid help and family coverage. That brings its own set of complications.
Yes, family members can step in to fill the gaps. They can take shifts, manage medications, and field calls from paid caregivers who don’t show up. However, the burden falls unevenly and compounds over time. Adult children who live nearby end up carrying more of the burden than those who live far away. Spouses or partners of adult children get pulled into care arrangements they didn’t sign up for. I’m talking about physical care. Changing diapers. Giving showers. Waking up in the middle of the night and rushing over to the parent’s house. The emotional weight of overseeing a parent’s daily care while managing one’s own life is significant. The longer this goes on, the more unsustainable it becomes. Most employers do not show much flexibility when it comes to extended family leave.
There is also the question of isolation. An older adult who can no longer drive is essentially homebound. They can’t drive to senior centers or visit friends. When it comes to aging, social connection is not a luxury. Strong social connections protect an aging person’s health. Isolation, on the other hand, has the opposite effect.
Research consistently links social isolation in older adults to increased risk of cognitive decline, depression, and even early death. A community designed for older Americans, by contrast, puts neighbors, activities, dining, and transportation within easy reach.
The Case for Exploring Options Early
Here is something that surprises many families. The most desirable retirement communities often have waiting lists. Many require applicants to pass a physical and cognitive screening at the time of application. If you wait until a health crisis—a fall, a stroke, a dementia diagnosis—you may find that you no longer qualify for the communities you would have chosen. (As I undertook the task of finding a senior living community a year and a half ago, I discovered that waiting lists could be as much as five years.)
Exploring your options while you are healthy and have time to be selective is not the same as deciding to move. It’s reconnaissance. You can tour communities, ask questions, get a feel for what appeals to you and what doesn’t, and put your name on a waiting list. (This generally requires a refundable deposit of $1,000 or so.) You can also put your name on more than one community’s list. Hedge your bets.
Look for a place you like. Finding one doesn’t commit you to moving. Many people who do this discover that the communities they visit are far more appealing than they expected. But, again, it’s worth shopping early. I took a small apartment in a retirement community that had the option to “move in and move up.” (I moved into a 1300-square-foot apartment and, within a year, moved up to a 1350 foot duplex.) Not all retirement communities offer the move up option. Most do have a wait list, however, and while you’re waiting, you can tackle the downsizing.
What Family Caregivers Can Do
Conversations about whether to move or not move are also easier when it’s not an emergency. A family discussion about housing options that happens over Sunday dinner, with everyone calm and the person at the center of it fully engaged, is a very different conversation from one that happens in a hospital waiting room after a fall.
If you’re a family member reading this alongside a parent or older loved one who is resistant to the conversation, a few things may help.
Lead with curiosity, not conclusions. “I’d love to understand what matters most to you about staying home” opens a conversation. “You really need to think about moving” closes one. The goal is to understand what your loved one is actually protecting—independence, familiarity, community, control. Look together at whether those things can be found elsewhere.
Offer to tour together. Many older Americans who are resistant to the idea of living in a retirement community have an outdated mental image of what such a community looks like. They may be picturing nursing home from decades past, institutional and depressing. Modern independent and assisted living communities are often genuinely attractive places. Seeing one in person changes the conversation.
Name the burden honestly, but without blame. It is appropriate to say, gently and once, that the current arrangement is not sustainable. Share your concerns with your aging parent. Use “I messages.” I am worried, I am stretched to the limit, and I want to find a solution that works for everyone.
Framing the moving option as a shared problem rather than a failing on anyone’s part makes it easier to hear.
A Range of Options Worth Knowing
Communities for older people are not all alike. Fortunately, there are many options ranging from independent living communities—essentially maintenance-free apartments with amenities and social programming—to assisted living, memory care, continuing care retirement communities that offer multiple levels in one place, and skilled nursing facilities for those who need full medical support. There are also affordable options for older people on fixed or limited incomes. These are far more available than most people realize.
This blog is exploring each of these options in depth in a series of posts. Whether you’re researching for yourself or helping a loved one think through the options, the goal is the same: to make an informed decision from a place of choice rather than crisis. The next post in the series looks at independent living communities—what they offer, who they’re right for, and what to look for when you tour.